AI Patient
Intelligence Engine
for Rare Disease.

One AI engine to find, engage, and understand rare disease patients.

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See how AI patient intelligence can move your program forward.

: About Us
Know Rare founders — a mother and son inspired by their rare disease journey

— Our Founders

Built by a
rare disease
family.

What started as our family's rare disease journey led us to build an AI Patient Intelligence Engine connecting 1M+ patients worldwide to new research, support, and industry partners.

1M+

Patient Reach

500+

Research Partners

Global Coverage

ISO 27001 Data Security

Therapeutic Coverage

Gene Therapy
Rare Metabolics
Rare Cancer
Rare Dermatology
Rare Autoimmune
Rare Hematology
Rare Heart & Kidney
Rare Neurology
: How It Works

One Patient Intelligence Engine.
Three Integrated AI Systems.

Continuously find, engage, and understand rare disease patients to better power research, development, and commercialization.

System 01

Find

HealthSignal

AI Patient Discovery

System 02

Engage

HealthStory

AI Patient Experience

System 03

Understand

HealthSense

AI Patient Insights

: System 01

HealthSignal

Find high-intent patients
through search behavior.

An AI engine that maps real-world search behavior, generates and tests tailored landing pages, and learns what surfaces the most relevant patients.

Search Intelligence

Scanning

High-Intent Patients

12,400

surfaced through search behavior

Signal Quality

89%

of queries match engaged patients

Landing Page Tests

3 Variants

Variant A

2.3%

CTR

Winner

Variant B

5.8%

CTR

Variant C

3.1%

CTR

Winner · Variant B

+152% lift · auto-promoted

: System 02

HealthStory

Engage patients continuously
through everyday conversations.

AI-guided conversations keep patients engaged while capturing real-world insights on symptoms, treatments, and quality of life over time.

healthstoryai

Hi Jake, how have your headaches been this week?

Still pretty bad — worst in the mornings, and bright light makes them worse.

● Symptom Entry · Headaches

Severity ↑ · morning onset + photophobia trigger noted. Logged.

Continue your conversation

Symptom Breakdown

Stress / tension headache 57%
Sleep disruption 24%
Light sensitivity 10%

Episode Duration

0–2 hours 0%
2–6 hours 31%
6–12 hours 62%
12+ hours 8%

: System 03

HealthSense

Understand patients better
through continuous intelligence.

Real-time patient intelligence powers smarter recruitment, deeper understanding, and more informed decisions for study protocols, market development, and commercialization.

Cohort · Pompe Disease

Real-Time Patient Intelligence

Live

Patients in Cohort

0

Treatment Adherence

0%

New Entries / Wk

+0

Reported Symptom Drivers

Sleep disruption 38%
Stress 29%
Skipped doses 21%

Episodes / Wk

0

AI Insight

Sleep disruption precedes 64% of reported flares — a target for adherence support.

: Our Programs

Powering rare disease
from research to launch.

Integrated AI patient intelligence programs supporting recruitment, strategy, and commercialization.

R&D

Clinical Development Program

Accelerate recruitment

Rare patient identification
Clinical trial recruitment
Real-world evidence generation
Outcome Faster enrollment
Medical

Medical Strategy Program

Understand patient experiences

Patient journey mapping
Disease burden analysis
Treatment experience insights
Outcome Actionable Insights
GTM

Commercialization Program

Support launch & growth

Market intelligence
Patient segmentation
Support & engagement initiatives
Outcome Faster uptake

: C A S E   S T U D I E S

Real programs. Real outcomes.
See the results.

See how pharma and biotech teams have used Know Rare's AI Patient Intelligence Engine to accelerate recruitment and generate real-world evidence.

Rare Metabolics

How AI Patient Intelligence Helped Rescue a Rare Pediatric Trial.

98% patients randomized
<1Mo to first patients
Rare Headache

How AI Patient Intelligence Helped provide a deeper understanding of pain management.

7x patient goal achieved
<2wks to recruit
Know Rare company logo

Power your rare disease work
with AI patient intelligence.

See how rare disease intelligence can move your program forward.

1M+

Patient
Reach

500+

Research
Partners

Global
Coverage

ISO 27001
Data Security

Schedule a meeting with us

See how AI patient intelligence can move your program forward.